Resources for parents

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jolandawd via bnash onto Patients, Families

Vermont Children's Hospital Transition Checklist for new coordinators

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Online IBD Self-Management Handbook NOW AVAILABLE FOR DIRECT PATIENT LOG-IN!!

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englije@peds.ufl.edu via sarahnocito onto pt pamplets

Online IBD Self-Management Handbook NOW AVAILABLE FOR DIRECT PATIENT LOG-IN!!

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The 11 year old son of Stacy Dylan demonstrates self-administering an NG tube for enteral feeding.

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lcooke via ddavis onto Patient Teaching

Resources for parents

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tprocopi via bnash onto Parents

Resources for parents

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jscholl via bnash onto Parent connections

Resources for parents

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lizdancel via bnash onto Education handbook

Here is a preliminary list of resources for parents, many of which were created by parents. Do you have suggestions for additional resources?

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sahuja via bnash onto Parent Advisory Teams

The 11 year old son of Stacy Dylan demonstrates self-administering an NG tube for enteral feeding.

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sahuja via ddavis onto Enteral Therapy

Alex Jofriet is CCHMC's amazing peer mentor. Alex created this amazing youtube video to share at our New Patient Orientation.

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smyers via pmorgan onto Videos

Online IBD Self-Management Handbook NOW AVAILABLE FOR DIRECT PATIENT LOG-IN!!

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jolandawd via sarahnocito onto Patients, Families

This discussion thread started by e-mail, but as I saw a gold mine of ideas develop, asked the RDs if we could share here. Please use the comments to add to the discussion...

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The 11 year old son of Stacy Dylan demonstrates self-administering an NG tube for enteral feeding.

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A list of Apps for Medication Adherence from Children's Mercy Kansas City

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jolandawd via jhicks onto Patients, Families

The 11 year old son of Stacy Dylan demonstrates self-administering an NG tube for enteral feeding.

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atirloni via ddavis onto Pt resources

What is Smart Patients? And why are we partnering?

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atirloni via sarahnocito onto Pt resources

A list of Apps for Medication Adherence from Children's Mercy Kansas City

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jmdorsey via jhicks onto Patient Resources

A list of Apps for Medication Adherence from Children's Mercy Kansas City

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jhicks onto Resource

This discussion thread started by e-mail, but as I saw a gold mine of ideas develop, asked the RDs if we could share here. Please use the comments to add to the discussion...

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ebobo via onto Enteral nutrition

The 11 year old son of Stacy Dylan demonstrates self-administering an NG tube for enteral feeding.

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ebobo via ddavis onto Enteral nutrition

Online IBD Self-Management Handbook NOW AVAILABLE FOR DIRECT PATIENT LOG-IN!!

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ksullivan via sarahnocito onto education for familes

Online IBD Self-Management Handbook NOW AVAILABLE FOR DIRECT PATIENT LOG-IN!!

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sarahnocito onto Get Involved!

What is Smart Patients? And why are we partnering?

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sarahnocito onto Smart Patients

Online IBD Self-Management Handbook NOW AVAILABLE FOR DIRECT PATIENT LOG-IN!!

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sarahnocito onto IBD Tools & Resources
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TTodd This is great. Love the shorter URL and flyer.

The 11 year old son of Stacy Dylan demonstrates self-administering an NG tube for enteral feeding.

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marhvnz via ddavis onto Enteral Feeding
atirloni That is awsome!! He did such a good job, very professional!  Now does he do this every night so he doesn't have to have it in during school?
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dwohl Thanks much. He drops the tube 5 nights a week and takes it out the next morning. He likes to take the weekends off and we and his doc agreed. Interestingly, Zac will only put the tube in on one...
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smyers Thanks David. (Here is the link to Zac's version! https://m.youtube.com/watch?v=4xwRrezN9Qw)

IBD education for teens and families.

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jerickson via pmorgan onto Gear Bag

Alex Jofriet is CCHMC's amazing peer mentor. Alex created this amazing youtube video to share at our New Patient Orientation.

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pmorgan onto Self Management

This is another educational tool created by our IBD transition task force at Children's Mercy Hospital.

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kfracchia via mhmaddux onto patient education

Thank you to the Noel Jacobs for starting this document and to others in the group who contributed! Comment here with feedback and questions.

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Diane Eskra via smyers onto Clinical Care

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