Helpful Family Resources (2 of 3)

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pmorgan via cjackson onto Self Management
jdavid's picture
jdavid These are amazing resources - a) the adjusting to IBD is a great validating handout for parents and kids alike b) the how to read your bloodwork is such a great idea, I wish my family and I had...
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pmorgan Thanks so much for your positive comments. It's very helpful to have your feedback and input so we can continue improving resources for families. I think the collaborative is working hard to...
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sarahnocito I just saw the comments and wonder if sharing tools like these via CIRCLE is one good way to broaden their reach. I'd be interested in a conversation about how to best do that - they are...
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rshonce Awesome, thanks!!

Helpful Family Resources (1 of 3)

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This handout was created by our IBD transition task force at Children's Mercy Hospital.

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mhmaddux via onto Patient education materials

This is another educational tool created by our IBD transition task force at Children's Mercy Hospital.

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This brochure was created by our IBD transition task force, as a way to provide education regarding various lifestyle behaviors to patients with IBD, in a manner that is nonintimidating, teen-frien

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smyers This is a fantastic transition resource. Thanks for sharing. Do you hand it to all of your teen patients or use a more targeted approach?
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skennedy I double Sarah's question! I think resources targeted at teens are all too rare. One note, this seems more targeted at teenage girls due to the color scheme; was that intentional?
mhmaddux Since this was just finalized, our plan is to begin passing this out to all patients 12+. We considered taking a more selective or targeted approach, but ultimately felt that all patients 12+...
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skennedy My apologies! I missed the second page. Thanks for alerting me to that.

Helpful Family Resources (3 of 3)

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Helpful Family Resources (2 of 3)

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Helpful Family Resources (1 of 3)

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skennedy These are great - thanks for posting!

Here is an interesting resource for depression management. I thought this might be of interest with Will's (INOVA team) recent post on the Population Management page.

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Here is an interesting resource for depression management. I thought this might be of interest with Will's (INOVA team) recent post on the Population Management page.

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The 11 year old son of Stacy Dylan demonstrates self-administering an NG tube for enteral feeding.

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Here is an interesting resource for depression management. I thought this might be of interest with Will's (INOVA team) recent post on the Population Management page.

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wpatten This is really helpful! We actually were planning on doing depression screening anyway, and hopefully we can add this into our process. Thanks!

Helpful Family Resources (1 of 3)

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jhicks NIce!

Helpful Family Resources (2 of 3)

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jhicks Great resources for families! Thank you.

Helpful Family Resources (3 of 3)

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Independent Living with IBD

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kzeribi's picture
kzeribi Thank you for sharing this Cole! There are a number of teams working in transitions--this would be a great forum for exchanging tools and experiences!

Traveling Tips

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Another good resources for our teens!

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know your rights

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sarahnocito Hey Cole! Did you know that Jim Berman (Advocate Children's Hospital, Park Ridge) wrote an article for CIRCLE in July 2012 on 504 plans for kids with IBD. I'm going to post the PDF of that issue...

Our flyer to promote patient and parent mentoring among our IBD patients.

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Transferring patients losing health insurance? Here is a list of many of the discount drug programs (reduced cost or free) that are offered by each manufacturer.

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Great information about a project that can help teens with self-management. Need to figure out how to get our patients involved with Ginger.io

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Transferring patients losing health insurance? Here is a list of many of the discount drug programs (reduced cost or free) that are offered by each manufacturer.

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Checklist given to parents / patients at time of diagnosis

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smyers What kind of feedback do you get re: this Kathryn? Do the families like it? Do they bring it back with them to the next appointment?
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kzeribi This is great Kathryn! I'm looking forward to learning about how to use this checklist (great idea). Would you consider posting this to our Green Giant LL Forum? This might be a good discussion...
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KAnderson We actually just finalized the checklist so we haven't started using it yet! We will be putting it in the IBD books we give out to new diagnoses so the next patient to be diagnosed will be the...

Inova Intro to ICN Letter

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KAnderson This is fantastic!

promoting patient and parent mentoring among IBD patients.

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Our flyer to promote patient and parent mentoring among our IBD patients.

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Like this PDSA from Vermont! Ran a PDSA cycle where patients in infusion asked to choose/read section of handbook, fill out “Let’s Review” and “Things to do”, and complete brief questionnaire.

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bmartineau via onto SMS Tools
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kzeribi This is a great idea! I'd love to hear how it is working and any comments you receive from patients and families. It would be great to share the adaptations you are making with the other teams!

Great resource to get patients to think through concerns

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bmartineau via lstanden onto SMS Tools

Another good resources for our teens!

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jscholl via onto Teen support

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