PWG Newsletter September 2017

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Parent onto PWG Newsletter

Parent Working Group Meeting, September 2017

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PAC Monthy Call: September 2017

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August PWG call about Transitioning from pediatric to adult GI care

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August 2017 PWG Call: Discussed transitioning from pediatric to adult GI care

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July 2017 PWG call to discuss the SCD diet

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Riley Parent Binder 1. Sample Riley Parent Binder This is a sample of the Riley Parent Binder.

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Help us promote the Fall Virtual Community Conference on October 11 from 4-8pm est!

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Help us promote the Fall Virtual Community Conference on October 11 from 4-8pm est!

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sarahnocito via marhvnz onto Virtual Community Conference

Help us promote the Fall Virtual Community Conference on October 11 from 4-8pm est!

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PAC Call: August 2017

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icnpatients onto PAC Monthly Calls

August 2017 PWG Call: Discussed transitioning from pediatric to adult GI care

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August PWG call about Transitioning from pediatric to adult GI care

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July 2017 PWG call to discuss the SCD diet

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Presentation by PAC member Christian Lawson on the process for patients to join the PAC

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View the complete playlist for the Virtual Community Conference here!

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Getting Involved and Finding Your Place in ImproveCareNow
So Many Ways to Participate!
Michael Seid

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The Next Frontier: ImproveCareNow Patient and Parent Innovation Fund
(Sarah Myers)

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Parent Working Group (Julia Ament-Cox and Justin Vandergrift)

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Patient Advisory Council (Alex Jofriet)

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The PRODUCE Study: What is an N of 1 Experiment?
(Dr. Lisa Opipari, Julies Stone)

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The COMBINE Trial: Overview and Early Reflections
(Dr. Michael Kappelman)

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From Idea to Dissemination: What does it Mean to Co-Produce Research in ImproveCareNow
(Dr. David Wohl)

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A Community-Wide Priority: Pre-Visit Planning ImproveCareNow
(Dr. Esther Isreal)

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Improvement at the Care Center Level: Social Work Driven Self-Management and Transition
(Erin Holbrook)

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Setting our Course: ImproveCareNow Model Care Guidelines
(Andrew Grossman)

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Introduction to ImproveCareNow and updates on the Network with Dr. Peter Margolis. 

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Introduction to the Spring 2017 Virtual Community Conference, given by Sarah Myers.

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MGHfC IBD Parent Mentoring Handbook

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Riley Parent Binder 1. Sample Riley Parent Binder This is a sample of the Riley Parent Binder.

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